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Table 1 Demographic characteristics of muscular dystrophy and fragile X syndrome cases reviewed from active and passive surveillance data sources

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

 

Muscular Dystrophy

Fragile X Syndrome

 

Active n = 384

Passive n = 3305

Active n = 141

Passive n = 795

Demographic Characteristic

Age Group (in years)

n

%

n

%

n

%

n

%

 0 to 9

26

6.8%

286

8.7%

12

8.5%

80

10.1%

 10 to 19

57

14.8%

477

14.4%

35

24.8%

169

21.3%

 20 to 29

62

16.1%

389

11.8%

31

22.0%

202

25.4%

 30 to 39

59

15.4%

338

10.2%

23

16.3%

114

14.3%

 40 to 49

37

9.6%

405

12.3%

12

8.5%

94

11.8%

 50 to 59

53

13.8%

483

14.6%

14

9.9%

57

7.2%

 60 or older

90

23.4%

927

28.0%

14

9.9%

79

9.9%

Race

 White

262

68.2%

1998

60.5%

66

46.8%

433

54.5%

 Black (African American)

75

19.5%

805

24.4%

57

40.4%

286

36.0%

 Other/Unknown

47

12.2%

97

2.9%

18

12.8%

76

9.6%

Receiving Care in Active Counties

384

100.0%

1428

43.2%

141

100.0%

231

29.1%