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Table 1 Demographic characteristics of muscular dystrophy and fragile X syndrome cases reviewed from active and passive surveillance data sources

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

  Muscular Dystrophy Fragile X Syndrome
  Active n = 384 Passive n = 3305 Active n = 141 Passive n = 795
Demographic Characteristic
Age Group (in years) n % n % n % n %
 0 to 9 26 6.8% 286 8.7% 12 8.5% 80 10.1%
 10 to 19 57 14.8% 477 14.4% 35 24.8% 169 21.3%
 20 to 29 62 16.1% 389 11.8% 31 22.0% 202 25.4%
 30 to 39 59 15.4% 338 10.2% 23 16.3% 114 14.3%
 40 to 49 37 9.6% 405 12.3% 12 8.5% 94 11.8%
 50 to 59 53 13.8% 483 14.6% 14 9.9% 57 7.2%
 60 or older 90 23.4% 927 28.0% 14 9.9% 79 9.9%
Race
 White 262 68.2% 1998 60.5% 66 46.8% 433 54.5%
 Black (African American) 75 19.5% 805 24.4% 57 40.4% 286 36.0%
 Other/Unknown 47 12.2% 97 2.9% 18 12.8% 76 9.6%
Receiving Care in Active Counties 384 100.0% 1428 43.2% 141 100.0% 231 29.1%