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Table 1 Demographics of the Probands and Parents who wrote the narratives

From: A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

  Proband
(n = 20)
Parent
(n = 20)
Gender of Proband
 Female 12 8
 Male 8 12
Mean Age of Proband
  42.15 ± 10.37 years 5.79 ± 4.68 years
Self-Reported Race/Ethnicity
 Caucasian 18 16
 Black 1 1
 Mixed Race 1 2
 Non-Hispanic 19 19
 Hispanic 0 1
Application Status
 Accepted 1 16
 Not Accepted/Reconsidered 17 2
 Decision Pending 2 2
Length of Narrative
 Longer than 1 page 10 13