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Table 1 Demographics of the Probands and Parents who wrote the narratives

From: A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

 

Proband

(n = 20)

Parent

(n = 20)

Gender of Proband

 Female

12

8

 Male

8

12

Mean Age of Proband

 

42.15 ± 10.37 years

5.79 ± 4.68 years

Self-Reported Race/Ethnicity

 Caucasian

18

16

 Black

1

1

 Mixed Race

1

2

 Non-Hispanic

19

19

 Hispanic

0

1

Application Status

 Accepted

1

16

 Not Accepted/Reconsidered

17

2

 Decision Pending

2

2

Length of Narrative

 Longer than 1 page

10

13