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Table 1 Breakdown of our cohort by state/territory compared with proportion of the Australian population

From: Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays

State/Territory Cohort
N (%)
Population <19 years
N (%)
New South Wales 324 (70) 1 780 756 (31)
Australian Capital Territory 10 (2) 89 739 (2)
Victoria 44 (10) 1 351 799 (24)
Queensland 51 (11) 1 180 313 (21)
South Australia 12 (3) 380 293 (7)
Western Australia 15 (3) 617 564 (11)
Tasmania 6 (1) 121 582 (2)
Northern Territory Nil 66 739 (1)
Total 462 5 589 474