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Table 3 PEMAT Understandability and actionability of co-created materials (n = 63)

From: Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism

PEMAT topic/category % agree
Content 92.1%
 The material makes its purpose completely evident.
 The material does not include information or content that distracts from its purpose. 90.5%
Word choice & style 93.7%
 The material uses common, everyday language.
 Medical terms are used only to familiarize the audience with the terms.
 When used, medical terms are defined.
 The material uses the active voice (e.g. action verbs). 95.2%
Use of numbers 96.8%
 Numbers appearing in the material are clear and easy to understand.
 The material does not expect the user to perform calculations. 96.8%
Organization 93.7%
 The material breaks or “chunks” information into short sections.
 The material’s sections have informative headers. 95.2%
 The material presents information in a logical sequence. 93.7%
 The material provides a summary. 96.8%
Layout & design 95.2%
 The material uses visual cues to draw attention to key points.
Visual aids 95.2%
 The material uses visual aids whenever they could make content more easily understood.
 The material’s visual aids reinforce rather than distract from the content. 92.1%
 The material’s visual aids have clear titles or captions. 95.2%
 The material uses illustrations and photographs that are clear and uncluttered. 88.9%
 The material uses simple tables with short and clear row and column headings. 97.5%
Total understandability 94.2%
Actionability 95.2%
 The material clearly identifies at least one action the user can take.
 The material addresses the user directly when describing actions. 92.1%
 The material breaks down any action into manageable, explicit steps. 92.5%
 The material provides a tangible tool (e.g. checklists) whenever it could help the user take action. 94.5%
 The material explains how to use the charts, graphs, tables, or diagrams to take actions 70.7%
 The material uses visual aids whenever they could make it easier to act on the instructions. 92.0%
Total actionability 90.5%