Skip to main content

Table 3 PEMAT Understandability and actionability of co-created materials (n = 63)

From: Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism

PEMAT topic/category

% agree

Content

92.1%

 The material makes its purpose completely evident.

 The material does not include information or content that distracts from its purpose.

90.5%

Word choice & style

93.7%

 The material uses common, everyday language.

 Medical terms are used only to familiarize the audience with the terms.

 When used, medical terms are defined.

93.7%

 The material uses the active voice (e.g. action verbs).

95.2%

Use of numbers

96.8%

 Numbers appearing in the material are clear and easy to understand.

 The material does not expect the user to perform calculations.

96.8%

Organization

93.7%

 The material breaks or “chunks” information into short sections.

 The material’s sections have informative headers.

95.2%

 The material presents information in a logical sequence.

93.7%

 The material provides a summary.

96.8%

Layout & design

95.2%

 The material uses visual cues to draw attention to key points.

Visual aids

95.2%

 The material uses visual aids whenever they could make content more easily understood.

 The material’s visual aids reinforce rather than distract from the content.

92.1%

 The material’s visual aids have clear titles or captions.

95.2%

 The material uses illustrations and photographs that are clear and uncluttered.

88.9%

 The material uses simple tables with short and clear row and column headings.

97.5%

Total understandability

94.2%

Actionability

95.2%

 The material clearly identifies at least one action the user can take.

 The material addresses the user directly when describing actions.

92.1%

 The material breaks down any action into manageable, explicit steps.

92.5%

 The material provides a tangible tool (e.g. checklists) whenever it could help the user take action.

94.5%

 The material explains how to use the charts, graphs, tables, or diagrams to take actions

70.7%

 The material uses visual aids whenever they could make it easier to act on the instructions.

92.0%

Total actionability

90.5%