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Table 3 PEMAT Understandability and actionability of co-created materials (n = 63)

From: Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism

PEMAT topic/category % agree
Content 92.1%
 The material makes its purpose completely evident.
 The material does not include information or content that distracts from its purpose. 90.5%
Word choice & style 93.7%
 The material uses common, everyday language.
 Medical terms are used only to familiarize the audience with the terms.
 When used, medical terms are defined.
93.7%
 The material uses the active voice (e.g. action verbs). 95.2%
Use of numbers 96.8%
 Numbers appearing in the material are clear and easy to understand.
 The material does not expect the user to perform calculations. 96.8%
Organization 93.7%
 The material breaks or “chunks” information into short sections.
 The material’s sections have informative headers. 95.2%
 The material presents information in a logical sequence. 93.7%
 The material provides a summary. 96.8%
Layout & design 95.2%
 The material uses visual cues to draw attention to key points.
Visual aids 95.2%
 The material uses visual aids whenever they could make content more easily understood.
 The material’s visual aids reinforce rather than distract from the content. 92.1%
 The material’s visual aids have clear titles or captions. 95.2%
 The material uses illustrations and photographs that are clear and uncluttered. 88.9%
 The material uses simple tables with short and clear row and column headings. 97.5%
Total understandability 94.2%
Actionability 95.2%
 The material clearly identifies at least one action the user can take.
 The material addresses the user directly when describing actions. 92.1%
 The material breaks down any action into manageable, explicit steps. 92.5%
 The material provides a tangible tool (e.g. checklists) whenever it could help the user take action. 94.5%
 The material explains how to use the charts, graphs, tables, or diagrams to take actions 70.7%
 The material uses visual aids whenever they could make it easier to act on the instructions. 92.0%
Total actionability 90.5%