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Table 2 Studies on MRKHS

From: Treatment management during the adolescent transition period of girls and young women with Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS): a systematic literature review

Authors

Study design

Objective

Country

Numbers (Participants, Studies)

Instruments

Bean et al. (2009)

Narrative literature review

Examination of psychological effects and quality of life following the diagnosis and treatment of MRKHS

USA

31 Studies (differing methodologies)

none

Heller-Boersma et al. (2007)

Randomized Control Trial

Examination of the effectiveness of group therapy based on a cognitive behavior approach with regard to the psychological outcome before therapy, after therapy (7 weeks), and 3 months after therapy in women with MRKHS

UK

Intervention Group (n = 19) (response rate: baseline 100 %, after treatment 84 %, follow-up 84 %; age: 28.9, SD 10.0)

Control Group (n = 20) (response rate: baseline 100 %, after treatment 80 %, Follow-up 80 %; Alter: 27.6, SD 7.1)

Symptom Checklist (SCL-90-R)/Rosenberg Self-Esteem Scale (RSE)/Impact of Events Scale (IES)/Short version of the Inventory of Interpersonal Problems (IIP-32)

Heller-Boersma et al. (2009)

Cross-sectional study

Examination of the psychological effect of MRKHS when comparing women with MRKHS and healthy women

UK

66 women (response rate: 20 %; age: 27.9, SD 1.0)

31 healthy women as a control group (response rate: 73.8 %; age: 27.8, SD 1.5)

Symptom Checklist (SCL-90-R)/Rosenberg Self-Esteem Scale (RSE)/Inventory of Interpersonal Problems (IIP-32)/Eating Disorder Inventory (EDI)

Holt et al. (2003)

Qualitative study

Examination of personal experiences of women with MRKHS, to gain insight into the psychological, social, and emotional consequences of diagnosis and treatment

UK

7 women (response rate: 17.5 %; age: 18–37)

Semi-structured interview guide

Huber et al. (2009)

Narrative literature review

Overview on the state of research on psychological aspects of women with MRKHS

Germany

43 studies (differing methodologies)

none

Loeser et al. (2002)

Qualitative study

Examination of mother-daughter relationships throughout the course of peri- and postoperative creation of a neovagina

Germany

8 women (response rate: no information; age: 14–21)

7 mothers (no additional information)

Structured interview guide

Patterson et al. (2014)

Qualitative study

Examination of the importance of MRKHS to gain insight into social challenges during the transition into adulthood

Scottland

5 women (response rate: no information; age: 18–22)

Semi-struktured interview guide

Weijenborg et al. (2000)

Cross-sectional study with pre-post design

Evaluation of the effectiveness of group therapy with regard to psychological burden before, at the beginning, and after treatment of women with MRKHS

Netherlands

17 women (for analysis: information from 15 women; age: 27.1; SD 10.0)

Symptom Checklist (SCL-90-R)