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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Nation-wide epidemiological study of Japanese patients with rare viral myelopathy using novel registration system (HAM-net)

Fig. 1

Enrollment process for the HAM-net registration system. This figure is displayed on the English version of the HAM-net website, hamtsp-net.com. The patient (right) must request a registration packet and mail the completed paperwork to the HAM-net offices, including documentation of the HAM/TSP diagnosis and a signed informed consent document. HAM-net staff (left) then contact the patient by telephone to conduct an interview every year. Data is obtained from both the registration documents and the telephone interviews. In return, patients are kept informed with regular newsletters and updates to the HAM-net website

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