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Table 2 Concordance between consortium principal investigators and corresponding patient advocacy group responses

From: The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network

  Average of corresponding PAG responses
Average PI response Very negative Somewhat negative No impact Somewhat positive Very positive
very negative 0 0 0 0 0
somewhat negative 0 0 0 0 0
no impact 0 0 0 0 0
somewhat positive 0 0 1 3 2
very positive 0 0 0 4 7
  1. PIs principal investigator, PAG patient advocacy group