Table 3 Research-related activities undertaken by RDPOs in the last five years
Activity | Number of RDPOs (percent of 61 survey respondents)a |
|---|---|
Provided funding to researchers, research bodies or a specific research fund/foundation separate to the RDPO | 36 (59.0) |
Collaborated with or provided non-financial support to researchers or research bodies | 47 (77.0) |
Established or maintained the organisation’s own patient registry (i.e. a data set containing clinical information about patients) or biobank (collection of biological samples) | 7 (11.5) |
Contributed to an external patient registry, data set, or biobank | 25 (41.0) |
Advocated to government or other authorities for research funding, other research resources, or changes in regulations relating to research | 22 (36.1) |
Participated in a committee within a government or research body responsible for research decision-making | 12 (19.7) |
Provided information or counselling to assist participants in research studies | 21 (34.4) |
Disseminated information about research (for example, by making information about research findings available on your website) | 48 (78.7) |
Conducted the organisation’s own research | 16 (26.2) |
None of the above | 3 (4.9) |