Long-term outcomes after allogeneic hematopoietic stem cell transplantation for metachromatic leukodystrophy: the largest single-institution cohort report

Table 4 Age at loss of common activities of daily living (ADLs) following HSCT for MLD

ID	MLD Subtype	Current age^a	Post-HSCT follow-up^a	Dressing oneself^a	Feeding oneself^a	Meal preparation^a	Toileting^a	Self-hygiene^a	School participation^a	Work/Volunteer participation^a	Independent living^a
3	LI	19,11	8,2	—	—	—	—	—	—	—	—
4	J	34,11	28,2	—	13,0	—	—	—	21,0	26,0	—
9	J	17,4	10,5	—	5,0	—	—	4,0	13,0	—	—
10	J	24,1	12,10	5,10	6,6	—	6,6	7,0	+	—	—
16	J	22,11	12,3	8,4	10,11	—	8,0	8,0	7,0	—	—
17	J	19,4	5,3	9,0	9,0	—	6,0	8,0	+	—	—
19	J	19,0	10,5	8,6	8,6	8,0	8,6	8,6	17,6	—	—
22	J	21,7	9,0	+	+	+	+	+	+	+	+
27	J	26,7	9,0	16,1	16,1	16,1	15,0	+	21,0	—	—
32	J	45,6	14,10	30,0	35,0	19,0	22,0	28,0	17,0	16,0	22,0
43	J	21,2	1,6	+	+	+	+	+	19,0	+	19,0
39	A	49,9	5,7	+	+	42,6	41,8	+	EC	41,8	41,8

^a All ages and post-HSCT follow-up times represented as years, months; LI Late-Infantile, J Juvenile, A Adult, EC Education completed, — Never achieved ADL, + Currently performing ADL

ISSN: 1750-1172