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Table 3 Hospital, medical and paramedical visits/consultations related to MPS II during the past 12 months (N = 51)

From: Diagnosis, quality of life, and treatment of patients with Hunter syndrome in the French healthcare system: a retrospective observational study

Hospital visits

n (%)

Mean (SD) visits/y

Emergency Room Visits

13 (25.5)

2.0 (1.3)

 Respiratory problems

6 (46.2)

 

 Abdominal pain/diarrhoea

2 (15.4)

 

 Ear infection

2 (15.4)

 Fever

2 (15.4)

 Chest pain

1 (7.7)

 Septic shock

1 (7.7)

Admitted to hospital

26 (51.0)

1.3 (0.8)

 Duration of stay (days)

 

10.4 (25.3)

Medical specialty

n (%)

Mean (SD) Visits/y

Dentist

22 (43.1)

4.3 (6.4)

Ear, nose, and throat

25 (49.0)

11.2 (22.0)

Ophthalmologist

15 (29.4)

1.5 (1.6)

Orthopaedic surgeona

14 (29.8)

2.7 (2.5)

Other specialist

16 (31.4)

 

  Dermatologist

5 (9.8)

 

  Pneumonologist

4 (7.8)

 

  Cardiologist

4 (5.9)

 

  Allergologist

1 (2.0)

 

  Paediatrician

1 (2.0)

 

Paramedical specialty

n (%)

Mean (SD) Visits/mo

Physical therapist

43 (84.3)

7.4 (4.9)

Speech therapist

20 (40.0)

5.3 (2.3)

Psychomotor therapist

21 (45.7)

4.0 (1.8)

Psychologist

14 (32.6)

2.8 (1.4)

  1. an = 47.