Skip to main content

Table 5 The patients’ solution sharing activities

From: Innovation by patients with rare diseases and chronic needs

 

Non-restricted sample (n = 263)

Restricted sample (n = 182)

Solution sharing activity

New to the world

New to the respondents

New to the world

New to the respondents

(n = 19)

(n = 65)

(n = 19)

(n = 36)

Shown it to other patients

89%

88%

89%

92%

Shown it to medical professionals

5%

6%

5%

2%

Shared the info on a website/blog/social network

37%

22%

37%

28%

Shared it through media

16%

5%

16%

8%

Shown it to commercial entities

11%

2%

10%

3%

Spent time and/or money to help others (people, companies) use the solution

11%

3%

10%

5%

Made a manual or documentation that helps using the solution

5%

3%

5%

5%