From: Innovation by patients with rare diseases and chronic needs
Reported (by respondents) improvements in overall quality of life (QoL) | ||||
---|---|---|---|---|
No change in QoL | QoL improved | Total (% of 167) | ||
Medical professionals’ assessments | Dangerous | 1 | 2 | 3 (2%) |
Not helpful/useful | 28 | 68 | 96 (57%) | |
Helpful/Useful | 23 | 45 | 68 (41%) | |
Total (% of 170) | 52 (31%) | 115 (69%) | 167* (100%) |