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Table 4 Perceptions of the solutions’ usefulness by patients and medical professionals

From: Innovation by patients with rare diseases and chronic needs

 

Reported (by respondents) improvements in overall quality of life (QoL)

No change in QoL

QoL improved

Total (% of 167)

Medical professionals’ assessments

Dangerous

1

2

3 (2%)

Not helpful/useful

28

68

96 (57%)

Helpful/Useful

23

45

68 (41%)

 

Total (% of 170)

52 (31%)

115 (69%)

167* (100%)

  1. Note: *the difference in the number of dangerous solutions in Tables 2 and 4 is due to missing experts-patients pairs of usefulness-QoL impact estimates.