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Table 2 Type, novelty, and usefulness of reported solutions

From: Innovation by patients with rare diseases and chronic needs

 

Novelty

Usefulness/Helpfulness

 

Novel to the patient (% of 142)

Novel to the world (% of 40)

Total (% of 182)

Dangerous (% of 4)

Not useful/helpful (% of 105)

Useful (% of 73)

Products

4 (3%)

15 (37%)

19 (10%)

0

4 (4%)

15 (21%)

Services

138 (97%)

25 (63%)

163 (90%)

4 (100%)

101 (96%)

58 (79%)

Total (% of 182)

142 (78%)

40 (22%)

182 (100%)

4 (2%)

105 (58%)

73 (40%)

  1. Note: Novelty and usefulness are judged by two medical professionals, kappa = 0.8.