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Table 5 Mean annual burden of illness of Becker muscular dystrophy in € (min-max)

From: Comparative cost of illness analysis and assessment of health care burden of Duchenne and Becker muscular dystrophies in Germany

 

Mean

Ratio of total COI [%]

Clinical severity stage

I

II

III

IV

V

Outpatient medical costs

366 (0-5,618)

1%

438 (0-5,618)

365 (0-2,901)

89 (0-256)

290 (0-1,066)

-

Inpatient medical costs

1,186 (0-56,053)

3%

256 (0-10,767)

678 (0-18,169)

-

8,837 (0-56,053)

-

Rehabilitation program costs (in-/outpatient)

375 (0-22,711)

1%

414 (0-16,977)

471 (0-22,711)

-

-

-

Drug treatment costs

139 (0-2,452)

<1%

55 (0-835)

112 (0-1-162)

286 (0-1,788)

519 (0-2,452)

-

Costs of rehabilitation services (e.g. physiotherapy)

2,249 (0-30,276)

6%

1,252 (0-9,332)

1,988 (0-23,405)

2,404 (0-14,643)

7,744 (0-30,276)

-

Costs of medical aids

742 (0-17,453)

2%

55 (0-894)

658 (0-8,571)

3,611 (0-17,453)

1,725 (164-3,098)

-

Costs of respiratory management

83 (0-1,281)

<1%

0 (0-15)

132 (0-1,281)

5 (0-38)

234 (0-779)

-

Total direct medical costs

5, 140

13 %

2,470

4, 404

6, 395

19, 349

-

Costs for the housing situation

2,182 (0-126,000)

6%

190 (0-7,200)

161 (0-5,400)

300 (0-1,920)

23,933 (0-126,000)

-

Costs for personal assistance for school and work attendance

-

-

-

-

-

-

-

Travel expenses

1,034 (0-14,432)

3%

722 (19-3,752)

925 (0-14,432)

1,539 (0-3,621)

2,215 (377-8,144)

-

Advocate support costs

1 (0-50)

<1%

1 (0-40)

0 (0-27)

-

7 (0-50)

-

Investments in house adaptions

870 (0-26,750)

2%

192 (0-3,000)

1,118 (0-12,583)

4,369 (0-26,750)

0 (0-3,929)

-

Investments in automobile adaptions

719 (0-42,210

2%

-

482 (0-5,000)

7,626 (0-42,210)

0 (0-3,229)

-

Other expenditures (e.g. artificial nutrition, alternative therapies)

29 (0-2,400)

<1%

21 (0-888)

44 (0-2,400)

-

-

-

Informal care costs

7,636 (0-148,920)

20%

5,523 (0-77,562)

4,643 (0-31,025)

3,435 (0-10,859)

33,867 (0-148,920)

-

Total direct non-medical costs

12, 471

32%

6,649

7, 373

17, 269

60, 022

-

Total direct COI

17, 611

45%

9,119

11, 777

23, 664

79, 371

-

Indirect costs caused by patients

18,922 (0-67,014)

48%

18,397 (0-52,756)

18,147 (0-44,394)

7,692 (0-40,500)

29,108 (0-67,014)

-

Indirect costs caused by parents

2,527 (0-33,039)

6%

2,767 (0-33,039)

2,415 0-18,173)

2,105 (0-4,210)

-

-

Total indirect COI

21, 449

55%

21,164

20, 562

9, 797

29, 108

-

Total COI

39, 060

 

30,283

32, 339

33, 461

108, 479

-

  1. Total burden of illness of BMD consisting of total direct medical and non-medical costs and indirect costs was calculated per-patient in € per year while taking disease progression into account. Because of rounding, percentage might not add up to exactly 100%.