Mean | Ratio of total COI [%] | Clinical severity stage | |||||
---|---|---|---|---|---|---|---|
I | II | III | IV | V | |||
Outpatient medical costs | 366 (0-5,618) | 1% | 438 (0-5,618) | 365 (0-2,901) | 89 (0-256) | 290 (0-1,066) | - |
Inpatient medical costs | 1,186 (0-56,053) | 3% | 256 (0-10,767) | 678 (0-18,169) | - | 8,837 (0-56,053) | - |
Rehabilitation program costs (in-/outpatient) | 375 (0-22,711) | 1% | 414 (0-16,977) | 471 (0-22,711) | - | - | - |
Drug treatment costs | 139 (0-2,452) | <1% | 55 (0-835) | 112 (0-1-162) | 286 (0-1,788) | 519 (0-2,452) | - |
Costs of rehabilitation services (e.g. physiotherapy) | 2,249 (0-30,276) | 6% | 1,252 (0-9,332) | 1,988 (0-23,405) | 2,404 (0-14,643) | 7,744 (0-30,276) | - |
Costs of medical aids | 742 (0-17,453) | 2% | 55 (0-894) | 658 (0-8,571) | 3,611 (0-17,453) | 1,725 (164-3,098) | - |
Costs of respiratory management | 83 (0-1,281) | <1% | 0 (0-15) | 132 (0-1,281) | 5 (0-38) | 234 (0-779) | - |
Total direct medical costs | 5, 140 | 13 % | 2,470 | 4, 404 | 6, 395 | 19, 349 | - |
Costs for the housing situation | 2,182 (0-126,000) | 6% | 190 (0-7,200) | 161 (0-5,400) | 300 (0-1,920) | 23,933 (0-126,000) | - |
Costs for personal assistance for school and work attendance | - | - | - | - | - | - | - |
Travel expenses | 1,034 (0-14,432) | 3% | 722 (19-3,752) | 925 (0-14,432) | 1,539 (0-3,621) | 2,215 (377-8,144) | - |
Advocate support costs | 1 (0-50) | <1% | 1 (0-40) | 0 (0-27) | - | 7 (0-50) | - |
Investments in house adaptions | 870 (0-26,750) | 2% | 192 (0-3,000) | 1,118 (0-12,583) | 4,369 (0-26,750) | 0 (0-3,929) | - |
Investments in automobile adaptions | 719 (0-42,210 | 2% | - | 482 (0-5,000) | 7,626 (0-42,210) | 0 (0-3,229) | - |
Other expenditures (e.g. artificial nutrition, alternative therapies) | 29 (0-2,400) | <1% | 21 (0-888) | 44 (0-2,400) | - | - | - |
Informal care costs | 7,636 (0-148,920) | 20% | 5,523 (0-77,562) | 4,643 (0-31,025) | 3,435 (0-10,859) | 33,867 (0-148,920) | - |
Total direct non-medical costs | 12, 471 | 32% | 6,649 | 7, 373 | 17, 269 | 60, 022 | - |
Total direct COI | 17, 611 | 45% | 9,119 | 11, 777 | 23, 664 | 79, 371 | - |
Indirect costs caused by patients | 18,922 (0-67,014) | 48% | 18,397 (0-52,756) | 18,147 (0-44,394) | 7,692 (0-40,500) | 29,108 (0-67,014) | - |
Indirect costs caused by parents | 2,527 (0-33,039) | 6% | 2,767 (0-33,039) | 2,415 0-18,173) | 2,105 (0-4,210) | - | - |
Total indirect COI | 21, 449 | 55% | 21,164 | 20, 562 | 9, 797 | 29, 108 | - |
Total COI | 39, 060 | 30,283 | 32, 339 | 33, 461 | 108, 479 | - |