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Table 5 Mean annual burden of illness of Becker muscular dystrophy in € (min-max)

From: Comparative cost of illness analysis and assessment of health care burden of Duchenne and Becker muscular dystrophies in Germany

  Mean Ratio of total COI [%] Clinical severity stage
I II III IV V
Outpatient medical costs 366 (0-5,618) 1% 438 (0-5,618) 365 (0-2,901) 89 (0-256) 290 (0-1,066) -
Inpatient medical costs 1,186 (0-56,053) 3% 256 (0-10,767) 678 (0-18,169) - 8,837 (0-56,053) -
Rehabilitation program costs (in-/outpatient) 375 (0-22,711) 1% 414 (0-16,977) 471 (0-22,711) - - -
Drug treatment costs 139 (0-2,452) <1% 55 (0-835) 112 (0-1-162) 286 (0-1,788) 519 (0-2,452) -
Costs of rehabilitation services (e.g. physiotherapy) 2,249 (0-30,276) 6% 1,252 (0-9,332) 1,988 (0-23,405) 2,404 (0-14,643) 7,744 (0-30,276) -
Costs of medical aids 742 (0-17,453) 2% 55 (0-894) 658 (0-8,571) 3,611 (0-17,453) 1,725 (164-3,098) -
Costs of respiratory management 83 (0-1,281) <1% 0 (0-15) 132 (0-1,281) 5 (0-38) 234 (0-779) -
Total direct medical costs 5, 140 13 % 2,470 4, 404 6, 395 19, 349 -
Costs for the housing situation 2,182 (0-126,000) 6% 190 (0-7,200) 161 (0-5,400) 300 (0-1,920) 23,933 (0-126,000) -
Costs for personal assistance for school and work attendance - - - - - - -
Travel expenses 1,034 (0-14,432) 3% 722 (19-3,752) 925 (0-14,432) 1,539 (0-3,621) 2,215 (377-8,144) -
Advocate support costs 1 (0-50) <1% 1 (0-40) 0 (0-27) - 7 (0-50) -
Investments in house adaptions 870 (0-26,750) 2% 192 (0-3,000) 1,118 (0-12,583) 4,369 (0-26,750) 0 (0-3,929) -
Investments in automobile adaptions 719 (0-42,210 2% - 482 (0-5,000) 7,626 (0-42,210) 0 (0-3,229) -
Other expenditures (e.g. artificial nutrition, alternative therapies) 29 (0-2,400) <1% 21 (0-888) 44 (0-2,400) - - -
Informal care costs 7,636 (0-148,920) 20% 5,523 (0-77,562) 4,643 (0-31,025) 3,435 (0-10,859) 33,867 (0-148,920) -
Total direct non-medical costs 12, 471 32% 6,649 7, 373 17, 269 60, 022 -
Total direct COI 17, 611 45% 9,119 11, 777 23, 664 79, 371 -
Indirect costs caused by patients 18,922 (0-67,014) 48% 18,397 (0-52,756) 18,147 (0-44,394) 7,692 (0-40,500) 29,108 (0-67,014) -
Indirect costs caused by parents 2,527 (0-33,039) 6% 2,767 (0-33,039) 2,415 0-18,173) 2,105 (0-4,210) - -
Total indirect COI 21, 449 55% 21,164 20, 562 9, 797 29, 108 -
Total COI 39, 060   30,283 32, 339 33, 461 108, 479 -
  1. Total burden of illness of BMD consisting of total direct medical and non-medical costs and indirect costs was calculated per-patient in € per year while taking disease progression into account. Because of rounding, percentage might not add up to exactly 100%.