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Table 3 Family status, education and employment status within the analyzed patient cohort

From: Comparative cost of illness analysis and assessment of health care burden of Duchenne and Becker muscular dystrophies in Germany

 

DMD

BMD

Patients

Parents

Patients

Parents

Family status [%]

Widowed

0

2

0

0

 

Divorced

0

5

4

9

 

Married

4

83

36

71

 

In a partnership

0

4

13

3

 

Unmarried

96

6

47

17

Education [%]

No qualification

20

2

0

3

 

School

74

78

82

82

 

University studies

6

20

18

15

 

Completed professional education

39

89

77

82

Employment status [%]

Non-working

49

8

32

18

 

Currently working

  
 

Self-employed

2

7

8

11

 

Employed

37

56

49

67

 

Quit working life

12

29

12

4

 

In stage I

-

17

0

0

 

In stage II

0

52

63

50

 

In stage III

25

15

13

0

 

In stage IV

50

13

25

50

 

In stage V

25

3

-

-

 

Reduced working time [%]

6

38

25

12

 

In stage I

-

10

22

71

 

In stage II

11

55

67

14

 

In stage III

11

13

11

14

 

In stage IV

67

19

0

0

 

In stage V

11

3

-

-

Gross salary per year [€]

Mean

11,405

24,168

35,871

27,414

 

Stage I

-

25,971

45,120

29,937

 

Stage II

22,200

25,140

33,377

22,071

 

Stage III

2,400

30,722

33,720

40,200

 

Stage IV

13,572

22,976

32,644

28,054

 

Stage V

6,712

17,745

-

-

  1. These demographic parameters were assessed to serve as basis for indirect cost calculation. Assessment was differentiated between patients and parents in consideration of patients’ clinical severity stages. Because of rounding, percentage might not add up to exactly 100%.