Table 9 Indications to psychological or psychotherapeutic support to the family member(s) and patient

Family members

• Fear to breastfeed or handle the newborn and/or infant refusal

• Lack of self-confidence or inadequacy feeling in coping with the disease

• Anxiety to be left alone with the disease

• Depression or disease refusal by one the two parents

• Altered relationship of the couple (e.g. lack of interest in carrying out activities as a couple, loss of intimacy, negative impact on sexuality, etc.)

• Culpability feelings and inability to take care of the non-affected children

• Discomfort feelings or depression of the siblings

Patient

• Stress or depression related to the visibility of disease manifestations and the feeling of being different

• Chronic pain exacerbated by daily care procedures

• Chronic itching resistant to therapy

• Stress or depression due to limitations in daily activities and social life

• Lack of compliance and adherence to treatment, particularly in

• Adolescence and adulthood