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Table 5 Potential factors associated with health behavior

From: The internet user profile of Italian families of patients with rare diseases: a web survey

 

Useful to recognize the diagnosis

Increased my anxiety

Discussed with physician

Improved my comprehension of the disease

Improved the

management of the disease

Changed food habits

 

OR 95% CI

p

OR 95% CI

p

OR 95% CI

p

OR 95% CI

p

OR 95% CI

p

OR 95% CI

p

Age group (ref > =55 years)

-

-

-

-

-

-

-

-

-

-

-

-

40 - 54 years

1.58

0.297

1.22

0.713

2.38

0.072

0.75

0.598

2.00

0.182

-

-

0.67 - 3.75

0.40 - 3.71

0.92 - 6.10

0.25 - 2.20

0.71 - 5.60

< 40 years

2.32

0.108

1.40

0.604

3.11

0.048

1.05

0.941

3.77

0.028

-

-

0.83 - 6.50

0.38 - 5.16

1.00 - 9.59

0.27 - 4.01

1.15 - 12.31

Child age

1.00

0.916

0.96

0.043

0.99

0.435

0.98

0.269

1.02

0.236

-

-

0.97 - 1.03

0.91 - 0.99

0.95 - 1.02

0.94 - 1.02

0.99 - 1.05

Motor disability

-

-

1.38

0.092

-

-

-

-

-

-

1.30

0.384

0.95 - 2.00

0.71 - 2.37

Intellective disability

-

-

-

-

0.95

0.856

0.64

0.083

0.68

0.079

-

-

0.58 - 1.58

0.39 - 1.06

0.44 - 1.05

Social network account

-

-

0.70

0.090

2.80

0.046

-

-

-

-

-

-

0.47 - 1.06

1.02 - 7.70

Participate in forums

1.68

0.023

0.70

0.090

1.62

0.086

1.44

0.150

1.77

0.017

-

-

1.08 - 2.63

0.47 - 1.06

0.93 - 2.83

0.87 - 2.39

1.11 - 2.81

Communicates electronically with physician

-

-

-

-

1.93

0.004

1.39

0.236

1.37

0.165

1.13

0.685

1.23 - 3.00

0.80 - 2.43

0.87 - 2.16

0.62 - 2.07

Searched for nutritional info

-

-

-

-

1.12

0.693

-

-

-

-

3.50

0.000

0.63 - 1.99

1.96 - 6.24

Searched for future pregnancies

1.41

0.138

1.44

0.119

1.79

0.061

-

-

1.58

0.118

1.42

0.240

0.89 - 2.24

0.91 - 2.28

0.97 - 3.30

0.88 - 2.84

0.78 - 2.61

Searched for alternative therapies

1.81

0.054

1.20

0.402

2.26

0.040

2.06

0.08

1.38

0.236

1.83

0.097

 

0.99 - 3.34

 

0.77 - 1.87

 

1.04 - 4.87

 

1.21 - 3.51

 

0.99 - 1.05

 

0.89 - 3.78

 
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172