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Table 5 Potential factors associated with health behavior

From: The internet user profile of Italian families of patients with rare diseases: a web survey

  Useful to recognize the diagnosis Increased my anxiety Discussed with physician Improved my comprehension of the disease Improved the
management of the disease
Changed food habits
  OR 95% CI p OR 95% CI p OR 95% CI p OR 95% CI p OR 95% CI p OR 95% CI p
Age group (ref > =55 years) - - - - - - - - - - - -
40 - 54 years 1.58 0.297 1.22 0.713 2.38 0.072 0.75 0.598 2.00 0.182 - -
0.67 - 3.75 0.40 - 3.71 0.92 - 6.10 0.25 - 2.20 0.71 - 5.60
< 40 years 2.32 0.108 1.40 0.604 3.11 0.048 1.05 0.941 3.77 0.028 - -
0.83 - 6.50 0.38 - 5.16 1.00 - 9.59 0.27 - 4.01 1.15 - 12.31
Child age 1.00 0.916 0.96 0.043 0.99 0.435 0.98 0.269 1.02 0.236 - -
0.97 - 1.03 0.91 - 0.99 0.95 - 1.02 0.94 - 1.02 0.99 - 1.05
Motor disability - - 1.38 0.092 - - - - - - 1.30 0.384
0.95 - 2.00 0.71 - 2.37
Intellective disability - - - - 0.95 0.856 0.64 0.083 0.68 0.079 - -
0.58 - 1.58 0.39 - 1.06 0.44 - 1.05
Social network account - - 0.70 0.090 2.80 0.046 - - - - - -
0.47 - 1.06 1.02 - 7.70
Participate in forums 1.68 0.023 0.70 0.090 1.62 0.086 1.44 0.150 1.77 0.017 - -
1.08 - 2.63 0.47 - 1.06 0.93 - 2.83 0.87 - 2.39 1.11 - 2.81
Communicates electronically with physician - - - - 1.93 0.004 1.39 0.236 1.37 0.165 1.13 0.685
1.23 - 3.00 0.80 - 2.43 0.87 - 2.16 0.62 - 2.07
Searched for nutritional info - - - - 1.12 0.693 - - - - 3.50 0.000
0.63 - 1.99 1.96 - 6.24
Searched for future pregnancies 1.41 0.138 1.44 0.119 1.79 0.061 - - 1.58 0.118 1.42 0.240
0.89 - 2.24 0.91 - 2.28 0.97 - 3.30 0.88 - 2.84 0.78 - 2.61
Searched for alternative therapies 1.81 0.054 1.20 0.402 2.26 0.040 2.06 0.08 1.38 0.236 1.83 0.097
  0.99 - 3.34   0.77 - 1.87   1.04 - 4.87   1.21 - 3.51   0.99 - 1.05   0.89 - 3.78