From: The internet user profile of Italian families of patients with rare diseases: a web survey
Age group | |||||||||
---|---|---|---|---|---|---|---|---|---|
<40 yrs (N = 211) | 40-54 yrs (N = 264) | >55 yrs (N = 42) | Total (N = 571) | p | |||||
N | % | N | % | N | % | N | % | ||
Increased my comprehension of the disease | 170 | 86.7 | 180 | 78.3 | 24 | 75.0 | 374 | 81.7 | 0.048 |
Increased my anxiety | 122 | 61.6 | 114 | 47.9 | 8 | 24.2 | 244 | 52.0 | 0.000 |
Improved the management of the disease | 140 | 73.3 | 135 | 61.1 | 14 | 48.3 | 289 | 65.5 | 0.004 |
Made me change my son’s food habits | 43 | 24.0 | 50 | 23.6 | 8 | 26.7 | 101 | 24.0 | 0.934 |
Was useful fo recognizing the diagnosis | 138 | 69.3 | 138 | 57.5 | 15 | 45.4 | 291 | 61.7 | 0.006 |
Discussed with physicians the information I found | 154 | 77.0 | 159 | 66.5 | 12 | 37.5 | 325 | 69.0 | 0.000 |
Changed physician | 22 | 12.4 | 21 | 10.0 | 4 | 13.8 | 47 | 11.3 | 0.693 |