From: The internet user profile of Italian families of patients with rare diseases: a web survey
Age group | |||||||||
---|---|---|---|---|---|---|---|---|---|
<40 yrs (N = 211) | 40-54 yrs (N = 264) | >55 yrs (N = 42) | Total (N = 571) | p | |||||
N | % | N | % | N | % | N | % | ||
Disease characteristics | 198 | 99.5 | 233 | 98.7 | 31 | 93.9 | 462 | 98.7 | 0.188 |
Diagnosis | 178 | 92.7 | 191 | 86.4 | 25 | 86.2 | 394 | 89.1 | 0.061 |
Therapy | 179 | 94.2 | 205 | 93.2 | 25 | 89.3 | 409 | 93.4 | 0.806 |
Nutrition | 106 | 64 | 110 | 60.4 | 13 | 59.1 | 229 | 62.2 | 0.687 |
Physical activity | 101 | 63.1 | 122 | 67.8 | 14 | 63.6 | 237 | 65.5 | 0.698 |
Specialty physicians or hospitals | 175 | 91.6 | 190 | 88.8 | 24 | 82.8 | 389 | 89.6 | 0.481 |
Prevention of complications | 155 | 88.1 | 173 | 86.9 | 17 | 70.8 | 345 | 86.5 | 0.026 |
Vaccines | 87 | 56.1 | 77 | 46.4 | 5 | 29.4 | 169 | 50.0 | 0.073 |
Alterative therapy | 118 | 70.7 | 100 | 57.1 | 12 | 54.5 | 230 | 63.2 | 0.018 |
Second opinion | 116 | 71.2 | 123 | 66.8 | 11 | 55.0 | 250 | 68 | 0.179 |
Further pregnancy | 108 | 64.7 | 71 | 43.6 | 9 | 50.0 | 188 | 54.0 | 0.000 |