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Table 2 Participant reported symptoms experienced in the previous 12 months

From: Impact of Friedreich’s Ataxia on health-care resource utilization in the United Kingdom and Germany

Symptoms United Kingdom n (%)1 Germany n (%)2
Gait / Posture symptoms
Problems with lower limb coordination 73 (97%) 23 (82%)
Muscle weakness (upper or lower limbs) 68 (91%) 17 (61%)
Problems with upper limb coordination 70 (93%) 18 (64%)
Gait Ataxia (off balance when walking) 60 (80%) 18 (64%)
Body sway when standing 63 (84%) 13 (46%)
Problems with standing upright 60 (80%) -
Muscle wasting (upper or lower limbs) 56 (75%) 17 (61%)
Problems with sitting upright 55 (73%) -
Foot problems/deformities 50 (67%) 15 (54%)
Scoliosis (curved spine) 46 (46%) 20 (71%)
Problems with sitting or standing upright - 23 (82%)
Other Symptoms   
Fatigue 65 (87%) 21 (75%)
Slowness and slurring of speech 62 (83%) 19 (67%)
Problems with swallowing 51 (68%) 0
Anxiety 39 (52%) 10 (35%)
Depression 37 (49%) 7 (25%)
Problems with eye movements 43 (57%) 8 (28%)
Palpitations 31 (41%) 6 (21%)
Heart enlargement 24 (32%) 9 (32%)
Other heart problems 15 (20%) 5 (17%)
Difficulty breathing 26 (35%) 6 (21%)
Loss of hearing 25 (33%) 6 (21%)
Loss of sight 22 (29%) 7 (25%)
Diabetes 9 (12%) 4 (14%)
Heart failure 5 (7%) 2 (7%)
  1. 1Source UK – PCIF.
  2. 2Source Germany - PCIF.