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Table 4 Visits to medical practitioners and allied health professionals by the 30 families in the last 12 months

From: Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

Medical practitioner Number of patients visiting at least once Total number of visits for the whole group
General Practitoner 24 168
Specialists 30 260
Paediatrician 18 69
Geneticist 16 41
Eye Specialist 24 34
Cardiologist 16 30
Dentist 17 28
Neurologist 11 20
Surgeon 13 20
Pain Specialist 4 4
Other Specialist 12 14
Allied Health Professionals 24 268
Speech Pathologist 7 70
Physiotherapist 10 63
Occupational Therapists 12 58
Social Worker 6 33
Dietician 10 28
Genetic Counselor 4 6
Other Allied Health Professional 3 10