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Table 5 Characteristics of CTSR sites seeing DMD patients

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Country

Sites reporting DMD patients

Total DMD patients

Minimum number of DMD patients per site

Maximum number of DMD patients per site

Avg pats/DMD site

Japan

1

230

230

230

230

Turkey

1

215

215

215

215

Australia

3

426

51

205

142

Israel

1

109

109

109

109

United States

29

2777

12

398

96

India

2

183

77

106

92

Pakistan

1

80

80

80

80

Belgium

3

219

33

104

73

Russia

3

206

44

95

69

Denmark

3

186

10

160

62

Czech Republic

3

163

10

110

54

Italy

15

795

8

187

53

United Kingdom

29

1514

3

252

52

Canada

9

458

18

155

51

Austria

1

50

50

50

50

Countries reporting a mean of 20–49 DMD patients per site*

91

2594

1

208

29

Countries reporting a mean of <20 DMD patients per site**

13

182

44

96

14

  1. *Brazil, Bulgaria, China, France, Germany, Hungary, Moldova, Netherlands, Norway, Poland, Portugal, Romania, Serbia, Spain, Sweden.
  2. **Chile, Croatia, Finland, Indonesia, Slovenia, Switzerland, Ukraine.