Skip to main content

Table 5 Characteristics of CTSR sites seeing DMD patients

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Country Sites reporting DMD patients Total DMD patients Minimum number of DMD patients per site Maximum number of DMD patients per site Avg pats/DMD site
Japan 1 230 230 230 230
Turkey 1 215 215 215 215
Australia 3 426 51 205 142
Israel 1 109 109 109 109
United States 29 2777 12 398 96
India 2 183 77 106 92
Pakistan 1 80 80 80 80
Belgium 3 219 33 104 73
Russia 3 206 44 95 69
Denmark 3 186 10 160 62
Czech Republic 3 163 10 110 54
Italy 15 795 8 187 53
United Kingdom 29 1514 3 252 52
Canada 9 458 18 155 51
Austria 1 50 50 50 50
Countries reporting a mean of 20–49 DMD patients per site* 91 2594 1 208 29
Countries reporting a mean of <20 DMD patients per site** 13 182 44 96 14
  1. *Brazil, Bulgaria, China, France, Germany, Hungary, Moldova, Netherlands, Norway, Poland, Portugal, Romania, Serbia, Spain, Sweden.
  2. **Chile, Croatia, Finland, Indonesia, Slovenia, Switzerland, Ukraine.