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Table 12 Industry enquiries to the CTSR (PR: Patient Registries)

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Company Date Type Disease Registry Geographic coverage
Prosensa July 2009 Feasibility enquiry DMD CTSR & PR Europe, USA, Canada
Acceleron September 2009 Feasibility enquiry FSHD CTSR only Worldwide
Trophos March 2010 Feasibility enquiry SMA CTSR & PR Europe
Acceleron June 2010 Feasibility enquiry DMD CTSR & PR Europe, USA, Canada, Japan
Santhera December 2010 Feasibility enquiry DMD CTSR & PR Europe, USA, Canada
Company X November 2011 Feasibility enquiry (refinement and update) DMD CTSR only Worldwide
Ultragenyx November 2012 Feasibility enquiry GNE myopathy CTSR only Worldwide
Eli Lilly May 2013 Feasibility enquiry DMD CTSR & PR Worldwide