Table 3 Reinforcement by therapeutic education of children with ichthyosis

Knowledge

Know the name of their disease.

30 (96.7%)

31 (100%)

Know how to explain why they are ill.

25 (80.6%)

31 (100%)*

Know the name of the treatment.

22 (70.9%)

27 (87.1%)

Know why they go to see certain specialists.

2 (6.4%)

31 (100%)*

Know-how

Think that there is no treatment against the itching.

5 (16,1%)

3 (9.6%)

Know what the treatments are for.

9 (29%)

29 (93.5%)*

Know why they have to apply cream every day.

23 (74.2%)

30 (96.7%)*

Think that Fucidine® (fusidic acid), an antibiotic cream, is a moisturizer.

3 (9.6%)

1 (3,2%)

Social skills

I can tell my doctor that I've had enough of the cream.

17 (54,8%)

30 (96.7%)*

Think that “it is not normal” to suffer pain.

12 (38.7%)

7 (22,5%)

Think that they should not tell the doctor that they didn’t understand what he said.

11 (35.4%)

0 (0%)*

If someone mocks me, I will tell an adult.

9 (29%)

22 (70.9%)*