Table 1 Porphyria centres providing activity data to EPNET from 2006 through 2009
Country | Porphyria centre | 2006 | 2007 | 2008 | 2009 |
|---|---|---|---|---|---|
Australia | NSW Porphyria Reference Unit, Royal Prince Alfred Hospital, Camperdown | X | X | X | X |
Belgium | Centre Belge des Porphyries, Hôpital Erasme - ULB, Brussels | X | X | X | X |
Metabool Centrum, UZ Gasthuisberg, Leuven | X | X | X | X | |
Brazil | Clinics Hospital of Ribeirao Preto, São Paulo | X | |||
Czech Republic | National Laboratory for Porphyric Disease, 1st Medical Faculty, Charles University of Prague | X | X | X | X |
Denmark | Danish Porphyria Center, Viborg Regional Hospital | X | X | X | X |
Finland | Porphyria Research Centre in Finland, University Central Hospital of Helsinki | X | X | X | |
France | Centre Francais des Porphyries, Hospital Louis Mourier (APHP), Colombes | X | X | X | X |
Germany | Deutsches Kompetenz-Zentrum für Porphyriediagnostik und Konsultation, MVZ Labor Prof. Seelig, Karlsruhe | X | X | X | X |
Hospital of the University of Munich | X | X | X | X | |
Porphyria Specialist Center Düsseldorf, University Hospital Düsseldorf | X | X | X | X | |
Porphyria Center Saxony, Klinikum Chemnitz gGmbH | X | X | X | X | |
Hungary | Hungarian Porphyria Center, Ministry of Defence National Health Center, Budapest | X | X | X | |
Porphyrin Laboratory, University of Szeged | X | X | X | X | |
Ireland | Irish Porphyria Specialist Centre, St. James´s Hospital, Dublin | X | X | X | X |
Israel | National Service for the Biochemical Diagnosis of Porphyrias, Rabin Medical Centre, Beilinson Hospital, Petah Tikva | X | X | X | X |
Italy | U.O. Medicina Interna Ia, IRCCS Ca' Granda Ospedale Maggiore Policlinico, University of Milan | X | X | X | X |
Laboratorio di Diagnostica Delle Porfirie e Delle Aminoacidopatie, Dipartimento integrato di Medicine e Specialita Mediche, University of Modena and Reggio Emilia | X | X | X | X | |
Porphyria Centre and Hereditary Metabolic Diseases, San Gallicano Institute IRCCS Rome | X | X | X | X | |
Interregional Reference Centre for prevention, surveillance, diagnosis and therapy of porphyrias, "Casa Sollievo della Sofferenza" Hospital IRCCS, San Giovanni Rotondo (Foggia) | X | ||||
The Netherlands | Euregional Porphyria Center Maastricht (EPCM), Maastricht University Medical Center | X | |||
Porphyria Center Rotterdam, Erasmus Medical Center, Rotterdam | X | X | X | X | |
New Zealand | Porphyria centre, Canterbury Health Laboratories, Christchurch | X | X | X | |
Norway | Norwegian Porphyria Centre (NAPOS), Haukeland University Hospital, Bergen | X | X | X | X |
Poland | Laboratory of Porphyria, Institute of Hematology and Transfusion Medicine (IHiT), Warsaw | X | X | X | X |
South Africa | UCT Lennox Eales Porphyria Labs, UCT Medical School, Cape Town | X | X | X | X |
Spain | Porphyria Unit, Hospital Clinic, University of Barcelona | X | X | X | X |
Porphyria Unit, Hospital Universitario Doce de Octubre, Madrid | X | X | X | X | |
Sweden | Porphyria Centre Sweden, Karolinska University Hospital, Stockholm | X | X | X | X |
Switzerland | Porphyrie-Referenzlabor, Stadtspital Triemli Zürich | X | X | X | X |
United Kingdom | Cardiff SAS Porphyria Service, University Hospital of Wales, Cardiff | X | X | X | X |
Leeds Teaching Hospitals NHS Trust, Leeds | X | X | X | ||
Porphyria Laboratory, King’s College Hospital, London | X | X | X | X | |
Salford Royal NHS Foundation Trust, Salford | X | X | X | X | |
USA | Porphyria Center, University of Texas Medical Branch, Galveston | X | X | X | X |