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Table 1 Response and inclusion

From: Public support for neonatal screening for Pompe disease, a broad-phenotype condition

 

Patients' organisation

Consumer panel

Response

    

questionnaires mailed

100

 

1500

 

questionnaires filled in (response rate)a

59

(59%)

757

(51%)

Pompe disease (in family)

    

Yes

59

 

2b

 

No

0

 

750

 

item missing

0

 

5c

 
 

Pompe disease (in family)

(n = 61)

neutral group

(n = 750)

Sufficient knowledge score

    
 

58

95%

555

74%

  1. a Not counting 5 members of the patients' organisation and 117 of the consumer panel who only provided their reason for non-response
  2. b Not verified. One of these responders was later excluded due to insufficient knowledge score.
  3. c Excluded from analysis