From: Public support for neonatal screening for Pompe disease, a broad-phenotype condition
 | Patients' organisation | Consumer panel | ||
---|---|---|---|---|
Response | Â | Â | Â | Â |
questionnaires mailed | 100 | Â | 1500 | Â |
questionnaires filled in (response rate)a | 59 | (59%) | 757 | (51%) |
Pompe disease (in family) | Â | Â | Â | Â |
Yes | 59 | Â | 2b | Â |
No | 0 | Â | 750 | Â |
item missing | 0 | Â | 5c | Â |
 | Pompe disease (in family) (n = 61) | neutral group (n = 750) | ||
Sufficient knowledge score | Â | Â | Â | Â |
 | 58 | 95% | 555 | 74% |