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Table 4 Questions and answers arranged to groups of respondents.

From: Coordinated multidisciplinary care for ambulatory Huntington's disease patients. Evaluation of 18 months of implementation

Questions

Answers*

Patients

 

1.I derive benefit from the treatment from the HD clinic

81% agree

6% don't agree

13% don't know

2. The professionals from the clinic are well informed about HD

100% agree

3. My health care professionals at home collaborate well with the professionals from the HD clinic

80% agree

0% don't agree

20% don't know

4. Through the meddling of the HD clinic my quality of life is

53% increased

27% even

13% don't know

0% decreased

Informal caregivers

 

1. I have confidence in the treatment given by the HD clinic

93% agree

7% don't agree

2. The professionals from the HD clinic are well informed about HD

93% agree

3. The health care professionals at home collaborate well with the professionals from the HD clinic

79% agree

0% don't agree

14% don't know

4. I am adequately supported by educated health care professionals

93% agree

7% don't know

5. Partly due to the HD clinic my partner is still at home

79% agree

7% don't agree

7% don't know

Nurses and day care workers

 

1.The professionals from the HD clinic support me adequately to implement the care plan coordinated by the clinic

100% agree

2. The professionals from the HD clinic are well informed about HD

100% agree

3. The method of working suits well with the regular care I give to my patient

100% agree

4. My collaboration with the professionals from the HD clinic is

71% amply sufficient

29% sufficient

5. My knowledge on HD has increased due to the HD clinic

100% agree

Healthcare professionals

 

1. The contribution of the HD clinic to the care for HD patients is evident to me

70% agree

10% don't agree

20% don't know

2. The method of working suits well with the regular care I give to my patient

77% agree

3% don't agree

20% don't know

3. I think it is good that HD treatment of our mutual HD patient is coordinated through the HD clinic

80% agree

3% don't agree

17% don't know

4. Collaboration with the professionals from the HD clinic is

40% amply sufficient

53% sufficient

3% insufficient

5. My knowledge on HD has increased due to the HD clinic

40% agree

37% don't agree

20% don't know

  1. * When the added numbers do not equal 100% one or more respondents did not fill out the question.