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Table 2 Median Phe values (range) and % Phe values above recommended range

From: "MY PKU": increasing self-management in patients with phenylketonuria. A randomized controlled trial

  Measurement Pre-study Study P-value
(pre-study vs study)
Group 1 Median Phe value (μmol/L) 336 (198-1330) 408 (200-1438) 0.093
Group 1 % Phe values above rec. range 44% 49% 0.13
Group 1
< 10 years
Median Phe value (μmol/L) 273 (198-298) 295 (200-317) 0.46
  % Phe values above rec. range 15% 19% 0.35
Group 1
≥ 10 years
Median Phe value (μmol/L) 599 (231-1330) 615 (271-1438) 0.16
  % Phe values above rec. range 57% 63% 0.16
Group 2 Median Phe value (μmol/L) 366 (144-1201) 381(173-1367) 0.96
Group 2 % Phe values above rec. range 48% 52% 0.40
  1. Group 1 = online availability (n = 20)
  2. Group 2 = usual procedure (n = 16)