Table 1 Characteristics of locked-in syndrome patients in 2007 and 2013
From: Quality of life in patients with locked-in syndrome: Evolution over a 6-year period
| Â | Â | Total of participants in 2007 | Participants reporting QoL in 2007 | Participants reporting QoL in 2013 |
|---|---|---|---|---|
|  |  | N = 67 | N = 46 | N = 39 |
1. Sociodemographics | Â | N (%) | N (%) | N (%) |
Gender | Woman | 26 (39) | 16 (35) | 15 (39) |
Man | 41 (61) | 30 (65) | 24 (62) | |
Age | Median [IQR] | 47 [38;57] | 51 [38;58] | 51 [42;59] |
Living status | Institutional setting | 26 (39) | 20 (44) | 6 (18) |
Own home | 41 (61) | 26 (57) | 27 (82) | |
Marital status | Couple | 35 (57) | 24 (57) | 15 (45) |
Single | 27 (43) | 18 (43) | 18 (55) | |
Children | No | 24 (42) | 16 (40) | 15 (50) |
Yes | 33 (58) | 24 (60) | 15 (50) | |
Educational level | < post-graduation | 46 (71) | 32 (70) | 26 (67) |
≥ post- graduation | 19 (29) | 14 (30) | 13 (33) | |
Month income (euros) | <1000 | 15 (27) | 13 (33) | 9 (36) |
≥1000 | 40 (73) | 27 (68) | 16 (64) | |
Religion | No religion | 19 (29) | 15 (33) | 10 (74) |
Religious | 46 (71) | 31 (67) | 29 (26) | |
2. LIS | Â | Â | Â | Â |
Type | Classical | 47 (71) | 31 (67) | 20 (61) |
Partial | 19 (29) | 15 (33) | 13 (39) | |
Disease duration | Median [IQR] | 8 [4;9] | 7 [4;9] | 14 [10;15] |
Etiology | Stroke | 51 (82) | 37 (84) | 31 (82) |
Traumatic | 8 (13) | 5 (11) | 4 (11) | |
Others | 3 (5) | 3 (5) | 3 (8) |