Table 4 Reinforcement by therapeutic education of parents of children with ichthyosis

Knowledge

Know the difference between a moisturizer, an antibiotic cream and local corticoids

33 (75%)

38 (86.3%)*

Know how to store the creams and their usage expiration

7 (16%)

26 (59.1%)

Know that ichthyosis is a genetic disease

32 (72.7%)

44 (100%)*

Know the recurrence risk of the disease

15 (34.1%)

22 (50%)*

Know-how

Know how to recognize dangerous situations

24 (54.5%)

39 (88.6%)*

Know what to do to manage the itching

11 (25%)

27 (61.3%)*

Know why their child goes to an occupational therapist

25 (56.8%)

39 (88.6%)*

Know how to adapt the treatment to the skin’s state

24 (54.5%)

34 (77.2%)*

Social skills

Know that they can benefit from a special allocation for their child

39 (88.6%)

44 (100%)*

Know the aid options at school

25 (56.8%)

42 (95.4%)*

Know whom to resort to in case of an emergency

29 (65.9%)

44 (100%)*

Know how to explain the disease at school

11 (25%)

26 (59.1%)*