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Table 3 Age of death in years in patients who did not receive riboflavin treatment

From: The Brown-Vialetto-Van Laere and Fazio Londe syndrome revisited: natural history, genetics, treatment and future perspectives

Age of death (years)

N deceased

% deceased

Mean age

Median age

Age range

SD

Group 1* (N=13)

11

85%

1.9

1.9

0.9 – 3

0.6

Group 2* (N=17)

9

53%

18.5

11

7.3 – 42

11.0

Group 3* (N=27)

5

19%

18.5

17.3

12 – 25

4.6

All patients (N=61)

28

46%

11.6

9.3

0.9 – 42

11.1

  1. *Group 1: age <4 years, Group 2: age 4–10 years, Group 3: age 11–17 years.
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172